Applying Social Media for Patients with Rare Diseases

I’m in Houston, TX this morning to present at RARE on the Road, a workshop for patients and caregivers living with rare diseases.

This is the first of three such workshops this summer presented by Global Genes and the Every Life Foundation for Rare Diseases. The next one will be June 30 in Salt Lake City, and the final session July 21 in Nashville.

Here are my slides:

We’re glad the Mayo Clinic Social Media Network can be a resource supporting this worthy cause.

Author: Lee Aase

Husband of one, father of six, grandfather of 15. Chancellor Emeritus, SMUG. Emeritus staff of Mayo Clinic. Founder of HELPcare and Administrator for HELPcare Clinic.

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