Patient Voice in Health Care

Today I’m participating in an event for patients, family members and health care professionals at Mayo Clinic in Rochester. It’s called “The Voice of the Patient in Harmony with Care: Safety Through Patient and Provider Partnerships.” My presentation, which I’m giving at 9:30 a.m. and 12:45 p.m., is entitled, “The Internet and Partnership Communication Opportunities of the Future.”

I’m embedding the slides from my presentation here, and including some key links below. I would appreciate any comments, questions or other feedback from the participants, and of course if any want to become SMUGgles, you’re completely welcome.


Here is our Mayo Clinic Podcasts blog, including the posts on POTS and Niemann-Pick Disease Type C.
Here is our Mayo Clinic page in Facebook, and the Organ Transplant group, as well as the Mayo Clinic-sponsored CarePages service.

Here is our Mayo Clinic YouTube channel, as well as one of the patient story videos from Rhonda King.

[youtube=http://www.youtube.com/watch?v=AFYiaMuZY4g]

This is the link, I believe, to the Long QT group on Yahoo that she mentioned.

Those who want to learn more about social media can enroll in SMUG, or just start with the Core Courses or the Facebook curriculum.

Please feel free to engage here in the comments, and discuss how these powerful tools could help meet important communication needs in the patient/provider relationship.

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Five Free Follow-Ups For Before 5 p.m.

I enjoy giving webinar presentations like this one, but I often think of slides I wish I would have added, and examples I would like to share, after I’ve submitted the presentation file to the organizers. And sometimes I forget to mention some points that I had intended.

One of the beauties of blogging is that I can share some additional notes and highlights so that people who participated in the webinar can explore on their own. It lets me make sure I covered the key points before the presentation even starts. Some of this may be review for long-time SMUGgles, but you may find portions helpful as well.

The main point about doing this before 5 p.m. is to not procrastinate. Those in the EST time zone will have a couple of hours after the webinar, while the PST gang has the whole afternoon. But since you’re reading this now, why not get started right away?

  1. Observe some examples. Check out our Mayo Clinic Podcast Blog (and particularly this post on Niemann-Pick Disease Type C), our Mayo Clinic YouTube Channel, our Facebook page and our News Blog. See this story from yesterday’s Wall Street Journal that includes a link to a Mayo Clinic Medical Edge video story, and this post from the WSJ’s Health Blog, which included one of our Flip videos from our YouTube channel. Besides providing information directly to consumers and potential patients, “new media” tools like web video and audio can help generate or enhance your traditional news coverage.
  2. Complete Podcasting 101, which is the first course in the Podcasting curriculum at SMUG. In the coming days, as you work through the 100-level courses, you will be able to create your own podcast and have it listed in iTunes for exactly $0.00. It’s all free. Like my podcast, Chancellor Conversations, this won’t have the production quality you would want for your official organization podcasts, but by working through the process step-by-step you will strip away the mystery, and no one will be able to tell you “it’s too complicated.” Then you can spend a few hundred dollars for some better recording equipment, and develop a really solid, low-cost, high-quality communication vehicle.
  3. Enroll in SMUG. The tuition is $37,700 less than Johns Hopkins. If you or your organization spend at least a few hundred dollars on a webinar, or thousands to attend a conference, to learn about social media, wouldn’t it be silly to not take the next step and get some hands-on experience, particularly when it’s free? Besides joining the SMUG Facebook group, you can friend me (be sure to mention the webinar), or follow me on Twitter. SMUG’s mission is reflected in our motto, and our goal is to help you discover what you can do at a ridiculously low cost (or perhaps even for free) and without any support from your IT department. In economic times like this, as Jacopo asked Edmond Dantes in The Count of Monte Christo, “How is that a bad plan?”
  4. Check out Slideshare.net. I thought Elizabeth Tracey’s point about connecting audio files with Powerpoint presentations was good, and Slideshare is a way you can do it today, for free. Here’s a link to one of my slidecasts from the Podcasting curriculum to demonstrate. Slideshare is like YouTube for PowerPoints; you can embed it in your own blog or site, and also can make it available in the “marketplace” for others to find and embed, increasing your reach.
  5. Complete Social Media 101, which is part of the Core Courses curriculum at SMUG and originally was my “12-Step Social Media Program for PR Professionals.” As in all similar programs, the first step is to admit that you have a problem. Social Media 101 will give you an introduction to the broad scope of social media tools that may have application in your work.

In addition to the five free things before 5 p.m., here’s a bonus you should do after 6 tonight. It’s not free, but you’ll be glad you did it:

Get a Flip video camera.

You can find them for $150 or so at Wal-Mart or Best Buy. If you’re into the delayed gratification thing and want to work through more of the SMUG curriculum, I hear you can get them even cheaper at Amazon.com. Consider it a Christmas gift to yourself. Spend another $15 or so for a tripod. You’ll want to have this for personal use; it’s the video camera you can always have with you, so you never miss those magic moments because you forgot to bring the camera bag. But then take the Flip to work and see how you can use it for business purposes.

I hope you found the presentation (and this post) helpful, and would appreciate any feedback in the comments below.

Facebook 109: Uploading a Video to Facebook

Facebook‘s video player isn’t as popular as its photo sharing application (which is the most popular photo sharing site in the world), but it’s a great way to share video with a defined group of people.

In YouTube, you have the choice of sharing either with the whole world or with a group of up to 25 of your YouTube friends. There’s really no intermediate option.

In Facebook you can make the sharing much more widespread without sharing with the world. And you can “tag” your video with the names of your Facebook friends who are featured, which makes it likely that they and their friends will see it, because it will show up in their news feeds.

It’s also possible to share videos just with members of a group, whether its members are all friends of yours or not. So, for example, I uploaded some videos of my daughter’s volleyball team to a group I had created as an on-line “booster” club.

picture-8

Here’s a video screencast for Facebook 109, demonstrating how you can upload a video to your personal Facebook profile:

[youtube=http://www.youtube.com/watch?v=PW1taSN0MjM]

Advantages of Facebook for Video Sharing:

  1. If Facebook users see and like your video, it’s really easy for them to share it with their Facebook friends (assuming you’ve allowed either Everyone or Friends of Friends to have access).
  2. As mentioned above (and as demonstrated in the screencast) you can limit who can see your video much more precisely. For example, you could customize the sharing so only friends can see, except those who are on your “Work Friends” list.
  3. Given Facebook’s popularity for photo sharing, it’s nice to be able to share both photos and videos on the same site.
  4. Users can comment on your videos, but they use their real names instead of relatively anonymous YouTube user IDs. This makes it more likely those commenting will behave themselves, and will reduce the potential crudity factor.
  5. The quality of the player is really good, especially with the new H.264 encoding.

Some disadvantages of using Facebook instead of YouTube:

  1. You can’t embed the Facebook player in your blog. People can only see the video on Facebook. This makes your content less portable. For instance, the screencast above was uploaded to my YouTube account and then embedded here. You could embed it in your blog if you’d like.
  2. You don’t get traffic figures on how many people are watching your video.
  3. People who aren’t in Facebook can’t see your video (at least I think not). If you don’t have a Facebook profile, please click this link and let us know in the comments whether you could see the video I uploaded during the tutorial. So if you want to share a video and don’t particularly care who sees it (and want it to be seen as widely as possible), YouTube is your best choice.

It isn’t, of course, an either/or proposition. You can upload videos to both YouTube and Facebook, but that’s double the work, double the upload time. An alternative is to upload your videos to YouTube, and then post the link to your video on your Facebook profile, page or group.

Assignments:

  1. Create a video file. If you need help in how to create a video file, check out these posts about the Flip.
  2. Upload the file to the SMUG group in Facebook.
  3. Share the video link with some Facebook friends (as you saw in the screencast), or post it to your Facebook profile.

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Facebook 106: Inviting Friends to Join Facebook

Facebook without friends is like… well, I’m not sure exactly what the simile would be, but it would certainly be lonely.

But you don’t need to remain friendless for long. If you’re a SMUGgle, I for one would be glad to be your friend. Just indicate your SMUGgleness when you send the friend request.

But I’m getting ahead of myself…or maybe ahead of you. What if you don’t know how to invite a friend?

That’s what this course is about. It’s easy.

Continue reading “Facebook 106: Inviting Friends to Join Facebook”

Facebook 104: Intro to Facebook Groups

Facebook Groups are a great way to gather people with a common interest, and have a common space for them to interact.

There are three basic kinds of groups in Facebook:

Open Groups – Anyone can join these, and they can form on a whim. In fact, as you are categorizing you group, one of the choices in the drop-down menu is “Just for fun – Totally Pointless.” Later in the curriculum (Facebook 120) I will show you just how easy it is to create a group. That doesn’t mean it will have any members, but starting the group is simple. And of course if you’re a SMUGgle you really should join the SMUG Facebook group.

Closed Groups – A limited portion of these groups can be seen by non-members, and they can request to join, but group administrators have to invite new members or approve those requesting access. This, for example, was the group type we used to share video and photos of my new granddaughter, Evelyn Grace. So if you want a moderate level of privacy, a closed group is a good option.

Secret Groups – These are quite private, and are not displayed on any of their members’ profiles. As I said here, don’t store bank account numbers or nuclear launch codes in a secret group, but for a fairly secure way of interacting with a defined group of Facebook users, a secret group can work. These are a little harder to form, in that you have to invite Facebook friends; they can’t request to join because they won’t be able to even have access to make the request. A good way around this is to form the group as closed, but then change it to secret once everyone has joined.

Members of groups don’t need to be “friends” in Facebook, so a group can be a way of allowing people with a common interest to interact. So I established Facebook groups for my daughter’s basketball team last year and her volleyball team this year. We’ll do this again for basketball season. So we can share links to news stories and upload video and photos, all without a bunch of high school students needing to be my “friends.”

If the people who are part of your “target population” are already in Facebook, a group can be a great way to bring them together, as we did for this Mayo Clinic Career Festival group, where we added about 350 members in a single day.

If you’re forming a group entirely made up of people from your workplace, a Yammer Group is a much better option than a Facebook group. But if you need to mix people from your workplace with others outside your company, a Facebook group can be a good solution.

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