Tomorrow I’m giving a presentation at the e-Patient Connections conference (#ePatCon) in Philadelphia, at the Park Hyatt Bellevue. It’s a really neat hotel, but the broadband “tubes” have a serious case of atherosclerosis.
Here are my slides.
I’m really looking forward to meeting a lot of people with whom I’ve only Tweeted previously. Just met @epatientdave in the lobby on the way up to my room. Will hopefully see @PhilBaumann, @MeredithGould and @DanaMLewis tonight too…and lots more tomorrow, including @SusannahFox.
Dr. Thor Sundt, a Mayo Clinic cardiovascular surgeon, gave a great presentation about a video project our cardiac surgery division did, in which they followed a patient and his family with a video camera through their entire experience. I hope to post some excerpts from his talk in an update, but for now would invite you to check out this video he showed to illustrate the importance of careful observation.
Update: Here are some video highlights of his presentation. The video experiment is at about the 2:30 mark.
Update 2: Here’s a video from Dr. Farris Timimi that gives more background on the “One Voice” program at Mayo Clinic, and the ideas behind it.
Today I’m participating in an event for patients, family members and health care professionals at Mayo Clinic in Rochester. It’s called “The Voice of the Patient in Harmony with Care: Safety Through Patient and Provider Partnerships.” My presentation, which I’m giving at 9:30 a.m. and 12:45 p.m., is entitled, “The Internet and Partnership Communication Opportunities of the Future.”
I’m embedding the slides from my presentation here, and including some key links below. I would appreciate any comments, questions or other feedback from the participants, and of course if any want to become SMUGgles, you’re completely welcome.
Here is our Mayo Clinic Podcasts blog, including the posts on POTS and Niemann-Pick Disease Type C.
Here is our Mayo Clinic page in Facebook, and the Organ Transplant group, as well as the Mayo Clinic-sponsored CarePages service.
Here is our Mayo Clinic YouTube channel, as well as one of the patient story videos from Rhonda King.
This is the link, I believe, to the Long QT group on Yahoo that she mentioned.
Please feel free to engage here in the comments, and discuss how these powerful tools could help meet important communication needs in the patient/provider relationship.
But Facebook, as a powerful general-purpose social networking site, may prove to be an even more useful alternative to these dedicated patient communication sites.
I will start by describing the very real needs CarePages and similar sites meet, and then discuss how Facebook can meet those needs.