Workplace Partnership for Life Webinar Slides

I’m doing a presentation early this afternoon for the Workplace Partnership for Life, a program that encourages organ donation campaigns. We will be hearing some case studies from other presenters, but I have been asked to share 15 minutes on “Using Social Media Wisely in a Health Care Setting.”

Here are the slides I’ll be using:

Some other relevant links participants might find helpful:

I look forward to the discussion this afternoon! And of course, it can continue here and on Twitter!

Twitter + Facebook = Kidney Donation

Here’s an interesting story from the Minneapolis Star Tribune, which illustrates an interesting and unusual application of social media tools in health care and medicine:

Chris Strouth needed a kidney transplant. He’d been on dialysis for months after Berger’s disease (which he called “Harold”) wreaked havoc on his renal system. So he tweeted about it, casting a wide electronic net with a plea to anyone he was even remotely connected to online. He got an impressive 19 offers, and one match — casual acquaintance and Facebook friend Scott Pakudaitis of St. Paul, whose left kidney, “William the Conqueror,” was transplanted into Strouth in December. Both are doing well, and the rest is Facebook history.

Check out the rest of the story.

Personalizing the Passion: Social Media, Transplant and Organ Donation

I’m in St. Louis this afternoon for the Association of Organ Procurement Organizations‘ annual meeting. If you want to see what anyone is saying about this in Twitter, use the #aopo hashtag.

Here are some other links participants might find helpful:

  1. Scott Meis and his blog, as well as the Donate Life Illinois group in Facebook.
  2. The LifeSource blog
  3. Bob’s NewHeart blog and his Facebook group
  4. Our Mayo Clinic Transplant Games 2008 activity.
  5. A post that lists our various Mayo Clinic social media platforms.
  6. The “Octogenarian Idol” post that’s gotten lots of traffic via a viral video.
  7. Finally, here’s the page that tells you the various ways you can enroll in SMUG to get hands-on social media experience, and implement the 10 steps I outline in the presentation above.

Social Media 210: Growing an Organ Donation Community

I’ve known Bob Aronson for nearly a decade, as I described here and here. As a heart transplant recipient, Bob is grateful for the additional years he has been given and has dedicated himself to promoting organ and tissue donation. And while his former career was in mainstream media relations, he’s taken to social media in his new vocation, with a blog called Bob’s NewHeart and a Facebook group as his main vehicles.

One of Bob’s goals is to get at least 5,000 members in that Facebook group, and to have people sharing their transplant and organ donation stories so their Facebook friends will realize how important donation is. In a recent email, he asked me for ideas on how he could increase the group membership (he’s had some recent success, as the group has grown from 300+ to 472 as I write this.)

Instead of responding by email, I thought it would be good to expand on my Seven Steps to Promoting Transplant through Social Media by adding some Twitter-related ideas, and also to throw it open to the SMUGgles for your additional thoughts.

To Bob’s credit, he has started a Twitter account (@bobsnewheart), which is an important way to connect with people who have common interests, and who you don’t yet know. I described this process and gave an example in Twitter 130: Listening with Twitter.

So here are my suggestions for how Bob can grow the Organ Transplant Patients, Families and Friends group in Facebook. And of course you can probably generalize the suggestions for particular applications you may have.

First, make the Web link associated with your Twitter profile the one that is your top priority, and that is most descriptive of you and your mission. So instead of his URL, I would recommend that Bob feature either or the Facebook group.


Second, start Tweeting about Transplant. Look for interesting articles and news stories on Web sites, and do brief posts on Twitter about them. Do it every day. This will help people who come across your Twitter profile understand what you’re all about, so as you engage in the next steps, they won’t consider your a Twitter spammer.

Third, apply Twitter 106 and Twitter 130 to your goals. Get Tweetdeck to make your interactions in Twitter much more efficient. Set up search tabs for “organ donation” and “transplant” as well as for Replies, Direct Messages and All Friends.

Fourth, Engage in Conversations. When you see an interesting Tweet in your search tabs, use Tweetdeck to follow the person, reply and — if you think it’s particularly interesting — re-tweet the post to your followers. As you get to know the individuals, you can invite them to join the Facebook group.

And you may find other valuable projects and initiatives with which you can connect. For example, you may find other people blogging about transplant that you can add to your blogroll; maybe they’re reciprocate. You may find other related Facebook groups that you would like to join.

The bottom line: if you’re focused on creating or passing along valuable, interesting content and making connections among like-minded people, you’ll be successful.

What other ideas do you have for growing a community?

Patient Voice in Health Care

Today I’m participating in an event for patients, family members and health care professionals at Mayo Clinic in Rochester. It’s called “The Voice of the Patient in Harmony with Care: Safety Through Patient and Provider Partnerships.” My presentation, which I’m giving at 9:30 a.m. and 12:45 p.m., is entitled, “The Internet and Partnership Communication Opportunities of the Future.”

I’m embedding the slides from my presentation here, and including some key links below. I would appreciate any comments, questions or other feedback from the participants, and of course if any want to become SMUGgles, you’re completely welcome.

Here is our Mayo Clinic Podcasts blog, including the posts on POTS and Niemann-Pick Disease Type C.
Here is our Mayo Clinic page in Facebook, and the Organ Transplant group, as well as the Mayo Clinic-sponsored CarePages service.

Here is our Mayo Clinic YouTube channel, as well as one of the patient story videos from Rhonda King.


This is the link, I believe, to the Long QT group on Yahoo that she mentioned.

Those who want to learn more about social media can enroll in SMUG, or just start with the Core Courses or the Facebook curriculum.

Please feel free to engage here in the comments, and discuss how these powerful tools could help meet important communication needs in the patient/provider relationship.

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