Where have all the polyps gone?

When I heard that Peter Yarrow of the ’60s trio (with Paul and Mary) had recorded The Colonoscopy Song to increase awareness of the need for colon cancer screening among those of his vintage, all sorts of lyrical possibilities ran through my mind…

Where have all the polyps gone?

Long time passing

Where have all the polyps gone?

Long time ago

Where have all the polyps gone?

Gone to lesions everyone!

When will we ever learn? When will we ever learn?

I naturally saw the progression moving from polyps to lesions to metastases (although that had too many syllables for the song’s meter) to graveyards. But instead of just recycling one of his oldies, Peter came up with a whole new song, which he performed on the CBS Early Show this week (and also posted to YouTube):

To support this screening awareness initiative, we interviewed a Mayo Clinic physician about for more background on colon cancer and colonoscopy.

I had my first colonoscopy about a year ago, a few years ahead of the time when I would otherwise qualify for a screening colonoscopy, as part of the journey that led to my diagnosis of celiac disease. The prep wasn’t the most fun, but I actually have no memory of the colonoscopy itself.

I don’t know whether my colon, like Peter’s, is “really cool.” But I’m glad to know it doesn’t have precancerous polyps. If you’re over 50 and haven’t had a colonoscopy, make an appointment this week to find out about the coolness of your colon.

Two Podcasts and a lowercase conversation

I’ve had the pleasure recently of some discussions about social media, two of which were recorded as podcasts and one that was summarized nicely in a blog post.

I enjoyed all of those discussions, and thought you might enjoy hearing or reading about them as well.

Facebook 120: Creating a Facebook Group

Groups enable Facebook’s 400 million monthly active users to congregate and interact in discussions related to a subject, even if they aren’t “friends” with all (or even any) of the other members.

Groups in Facebook are different from Pages and even personal Profiles.

  • Profiles are for individuals…for real people. These are the basic user accounts everyone from students to grandparents create. You cannot create a Group unless you have first joined Facebook by creating your personal profile.
  • Pages are for organizations, or brands. In our Mayo Clinic context, we have one Facebook “fan” page.
  • Groups are the means to create connections among people with common interests, and are the way to create communities in Facebook. The rest of this post will take you through the process of creating a Facebook group.

I established the Facebook Group Users Group as a way for people to get guidance on setting up Facebook groups. Please feel free to join it. In a moment, I will take you step-by-step through the process of setting up a group, using the Facebook Group Users Group as an example.

But first, here are some of the key issues you need to decide when setting up your group:

Should it be limited to one of your networks, or open to all of Facebook?

This is a different question than the Open/Closed/Secret one below. If you limit the group to only the Mayo Clinic College of Medicine network, for instance, only people with a Mayo.edu email address will be able to join. Once you decide, you can’t change your mind, so I generally recommend making it open to all of Facebook. You can still limit access by making the group Closed or Secret, but once you’ve chosen to limit to a network you can’t later make it more open.

Should it be Open, Closed or Secret?

  • An Open group is the easiest to administer, because anyone can join it without being invited or getting approval from a group administrator. If you want to build a group quickly and if confidentiality of information shared isn’t a concern, open is the way to go.
  • Anyone can see basic information about a Closed group (and can request to join), but wall posts, discussions and photos are limited to members. Group creators or administrators can invite their Facebook friends to join. If you have some need to limit access to the conversations and group membership, Closed is a good option. As administrator, you will get a Facebook message whenever someone requests to join, which you can approve or deny.
  • A Secret group is the most confidential option, but also the most difficult to form. The only way people can join is by being invited, because the group won’t show up in public listings or on anyone’s individual profile. To invite someone to the group, you need to be their friend in Facebook (or invite them via email through the group.)

One short-term option you can use is to start the group as Open or Closed, and then once everyone has joined you can switch it to Secret.

How to set up your Facebook Group

Note: Click any of the images below to see a larger version.

From your Home page in Facebook, click on the Groups link in the left column navigation:

Then at the top of the page you will see a button that says “Create a Group.” Click it.

This will bring you to the first page of group set-up, for which I have inserted below the screen shot of the settings I used for the Facebook Group Users Group.

A few points:

  • Except in unusual circumstances, you will want to make the group “Global (Available to all of Facebook) under the Network setting. You can still manage who is allowed to be a member of the group via the Closed or Secret settings in the next step, but once you limit to a particular network you are forever barring people outside of that network from joining. If, however, you want a group to only be available to members from your workplace (or school), you could limit to one of your networks. But once you decide that, you can’t change it.
  • Take time to choose your Group Type and sub-type. With each of the Categories, there are different options for sup-type. Here is a listing of the Categories:

  • Choose a meaningful title and add a good description of the group. This will make it more likely that if friends of your group members see the group, they will find it interesting and decide to join.

When you click the “Create Group” button on the bottom of the first page, you will go to a second page that enables you to set options for who is able to post to the group’s Wall, or upload photos and videos. Unless you have a specific reason to be more exclusive, I recommend enabling anyone who is a member of the group to write on the wall and upload photos and video.

The goal is interaction, after all.

On this same page, you will be able to choose whether the group is Open, Closed or Secret (as described above.) Here is what that choice looks like:

When you hit the “Save” button, you will be asked whether you want to publish a notification to the wall of your personal Profile and to your friends’ home pages. It will look like this:

If you want the world to know that you have created this group so others will be encouraged to join, hit the Publish button. If you only expect to invite a limited number of people to join (as in the example of an online focus group or patient support group), hit “Skip.”

In Step 3, you get to invite your friends to join the group.

Just start typing their names (or you also can invite an entire friend list), and when their names show up you can click on their picture to select them. After you have selected all those you would like to invite (and added any message describing the group and why you invited them), you can send the invitations and go back to the front of the Group.

From there, you can upload a picture to represent the group, as you see below.

It’s a pretty straightforward interface; I decided for the Facebook Group Users Group to upload a screen shot of the first step in creating a group. The picture you choose should be meaningful for your group.

That’s really all there is to creating a group in Facebook. In a separate post, I will highlight some of the basic interaction steps within a group, and how you can further customize it to be most useful.

Life-Saving Video Goes Viral, Gets Press Coverage

Last week, I got a direct-message tweet from Amber Smith (@AmberSmith), a reporter from Syracuse, NY. I had met Amber previously (because of Twitter) and we have interacted via Twitter, and she was tweeting because she had seen some chatter about one of our Mayo Clinic videos being among the most-tweeted videos on Twitter. It’s about continuous chest compressions, a kind of CPR that doesn’t involve mouth-to-mouth.

I have embedded that video below, but here’s the link to the in-depth story Amber did for Syracuse.com, as well as the sidebar about the viral phenomenon with this video (most of the nearly 3 million combined views as of this moment have been from a copy the Arizona Department of Health Services uploaded) and a post with more links to relevant research papers on Amber’s personal blog.

This story is another example of both Thesis 9 and Thesis 33. The original video was produced as part of our Mayo Clinic Medical Edge news program for television stations, and the story ran in 2008. Now, because of the power of social media, it has gone viral, which has led to more mainstream news coverage, which will undoubtedly increase the YouTube traffic. And as a result, more people who are untrained in mouth-to-mouth CPR will be aware of the continuous chest compressions alternative.

I hope you will take a couple of minutes to watch the video above, and also to read Amber’s story. Then I hope you will share this post (or the video) with your friends via email, or Facebook, or Twitter, or however you like to spread the word.

SMUG Changing Lives…

…or at least one life. After the presentation I did Thursday in Minneapolis for Aging Services of Minnesota, Kris Glaros Hanson came up to me and said that my presentation to the group last September had significantly changed her career plans. I asked if she’d be willing to tell about it on camera, so here is her story:

I look forward to seeing how Kris puts her SMUG training to work on the site she will be launching, theseniorconnections.com.

If you’d like to share your SMUG experience, either your thoughts about one of my presentations or the online curriculum, please do so in the comments below. If you’d like to write a recommendation for my on LinkedIn instead, that would be great too. Here is my public profile.

And of course I welcome your constructive suggestions for improvement, too.